Tag: tethered-cord
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Patched
About a Blood Patch All this reminds me that our lives are like seeds you harvest for a future garden. Once you’ve veered off the most direct path, the opportunities to correct that trajectory are almost without limit. I lay on the couch like a sloth while Colin stirs pots, shakes spice bottles, and bangs plates…
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The Untethering- Part 2 -Waking Up
First, a teaser for my next collaboration with Ben Leinbach – a new rendering of a timeless chant invoking genesh, the remover of obstacles. This version relates to mental health as it is being challenged today, using voices of real people I happen to know with real struggles, and the tools they use to find…
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The Untethering – Part 1
Note: The next few entries will be very detailed information about my tethered cord experience, which will be utterly boring to most people. However, I’ve received quite a few messages from fellow “warriors” with questions about diagnosis and treatment of tethered cord, the exact surgical process and recovery process – so this is for them. …
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Tethered Cord and the Great Untether
The diagnosis of tethered cord was barely on my radar until I saw my current Physical Therapist, Dr. Caroline Creager. An EDSer, herself, Dr. Creager has done deep dives into whatever research is available regarding the more malevolent ghosts which ride with hEDS, in order to help herself and her kids. Honestly, at first I…
Niki Naeve 