Category: Uncategorized
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The Occult of the Tethered Cord
The Occult of the Tethered Cord By this time, late December 2023, Colin and I are jokingly referring to the whole affair as “The Occult of the Tethered Cord.” It seems so surreal. Dr. Klinge had said she was scheduling out to late February. Colin and I poured over our calendars; we both had a…
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Tethered Cord and the Great Untether
The diagnosis of tethered cord was barely on my radar until I saw my current Physical Therapist, Dr. Caroline Creager. An EDSer, herself, Dr. Creager has done deep dives into whatever research is available regarding the more malevolent ghosts which ride with hEDS, in order to help herself and her kids. Honestly, at first I…
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Dearest Dad
December 15, 2023 Dearest Dad, I’m afraid that, once again, you have mistaken me for someone with unlimited time, energy and inclination to believe they can do a better job at a formal investigation than the DOJ, federal officers in Delaware, and/or a pack of trained lawyers regarding a laptop. Since this is your fifth…
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The Body Beat
The Body Beat August 2023 Hello and happy summer, everybody! I know no one will read this whole thing, and that’s very much all right. Yes, I write these things to have my wounds kissed, but just as much to organize and crystallize information in my own head. The medical stuff makes more emotional sense…
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Cocoon
October 2022 So It Appears I Finally Have A Plan… Houston, it appears I finally have a plan. Sort of. This week I met with the generous vascular surgeon Kurtis Kim, (thanks to a grant from a grateful patient of his) and a bariatric surgeon from UCHealth, Dr. Akshay Chauhan. Between them (and more than…
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I May Have Covid-19, But We May Never Know…
So, here’s my Covid-19 – related story today. Of course it probably wouldn’t have been Covid-19 related if it had happened a month ago. But today I got to see what life is like for the amazing folks at Urgent Care and and an ER prepped to the nines for the oncoming wave. So February…
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One Dream
State of the Niki, April 20, 2019 “When you’re healthy, you have a thousand dreams. When you are sick, you have but one dream.” – Unknown So this is the latest: I’m seeing a new Immunologist, Dr. Isaac Melamed, and a new Rheumatologist, Dr. Stuart Kassan. Dr. Melamed ordered a total of 46 tubes of blood…
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From the Archives – License to Drive
https://www.blogger.com/navbar/8201232525367214319?po=7365430933555165049&origin=https://nikinaeve.blogspot.com&usegapi=1&jsh=m%3B%2F_%2Fscs%2Fabc-static%2F_%2Fjs%2Fk%3Dgapi.lb.en.OE6tiwO4KJo.O%2Fd%3D1%2Frs%3DAHpOoo_Itz6IAL6GO-n8kgAepm47TBsg1Q%2Fm%3D__features__#id=navbar-iframe&_gfid=navbar-iframe&parent=https%3A%2F%2Fnikinaeve.blogspot.com&pfname=&rpctoken=23136572 Wednesday, April 26, 2006 License To Drive -or- How Terrorism Made Me Lose Hair Today So, do I have a valid drivers license yet? Heh. Nope, not yet. No license. Not at all. Not really. Come to think of it. No. Some of you know the beginning of the story – my driver’s license…
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From the Archives – My First Equity Gig 5-17-06
https://nikinaeve.blogspot.com/2006/04/license-to-drive-or-how-terrorism-made.html “Hello.” “Hi, Shirley?” “Yes…” “Shirley, this is Niki Naeve. You called me yesterday evening to offer me the role of Mrs. Linton in Wuthering heights.” “Yes, Niki. You didn’t call me back.” ‘Well, I got your message late last night and I left you an email; then I called you this morning.” “Yes, and…
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From the Archives – Audition Day 3
Copied from Niki’s Blogspot: https://nikinaeve.blogspot.com/2002/02/audition-day-3-callback.html Tuesday, February 12, 2002 Audition Day 3 (The Callback) By the time I arrived I had to pee so badly I could see no further than the fantasy of a bathroom, and cared little for whether there was a job on the other side of it. Of course, being run…
Niki Naeve 